• Utilize the Intake form to obtain all necessary client, medical, demographic information; document to support families in meeting goals.
• Conduct care consultations and needs assessments for people living with ALS, caregivers, and families in a variety of settings including virtual visits, by phone/email, in clinic and support groups. Refers to Care Services Manager for complex case-expertise area.
• Actively manage a portfolio of clients, assuring client and caregiver needs are met within the capabilities of The ALS Association.
• Provide information on programs, services, resources and printed/electronic educational materials available to persons with ALS and their families.
• Coordinate referrals to ALS Association programs as well as healthcare providers and community agencies.
• Facilitate resource support group meetings, engage participants, and schedule speakers as appropriate to meet the needs of the group.
• Document all pertinent engagements with persons living with ALS, family, caregivers, or other healthcare professionals involved with the delivery of care and support in the database.
• Ensure quarterly contact/engagement with those living with ALS and/or their caregivers.
• Educate and provide those served on the available nationwide, state, and local resources through utilization of The ALS Association Resource & Referral Hub.
• Serve as a member of the ALS Clinic multidisciplinary team and function as the liaison between the clinic and The ALS Association.
• Participate in continuing education seminars, workshops, and conferences as available and necessary to gain knowledge on related topics.
• Perform other related duties as assigned by management.

• Bachelor’s degree in social work, nursing, public health, or related area, preferred.
• Minimum of 3 years related professional experience including direct care and/or case management experience. Occupational therapist, physical therapist, speech therapist or direct experience working with the ALS population is a plus.
• Associate’s degree may be considered, if combined with three or more years of experience in a similar role.
• Ability to work independently with little supervision; must be a self-starter.
• Knowledge of ALS preferred, but not required.
• Knowledge of Medicare, Medicaid, patient assessments skills, planning and case management preferred.
• Commitment to organization and highly efficient and conscientious about thorough follow-up.
• Skilled communicator, with superior interpersonal, verbal, and written skills.
• Ability to handle confidential information and maintain high confidentiality.
• Excellent organizational and writing skills as well as diligent attention to detail.
• Employee must be able to lift or move 10 pounds, infrequently lift and/or move up to 25 pounds.
• Proficient computer skills, especially with Microsoft Office and other databases. Experience with Salesforce is a plus.
• Ability to drive locally and travel nationally on Association business is required or requested.
• Ability to work occasional evenings and/or weekends for Association business and events.

The ALS Association has compensation ranges for various work locations throughout the United States, allowing us to compensate employees competitively and consistently in diverse geographic markets. The above-listed listed range shows prospective compensation for this role; the appropriate range will be established by what is eventually determined to be the candidate's primary work location. Various factors, including the complexity and significance of the role, job duties/requirements, relevant experience and abilities, and primary work location, determine individual compensation. Compensation ranges are evaluated and typically adjusted on a regular basis. Offers are made within the compensation range that is in effect at the time of the job offer.

The Association may, at its discretion, offer merit-based increases tied to individual performance. The benefits listed may differ depending on employment status with the Association. Healthcare benefits, a 401(k) plan with employer match, short-term and long-term disability coverage, basic life insurance, well-being benefits, paid time off and several paid holidays are available to Association employees, among other benefits.

We are an equal opportunity employer, and all qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity or expression, pregnancy, age, national origin, disability status, genetic information, protected veteran status, or any other characteristic protected by law.

The ALS Association endeavors to make www.als.org accessible to any and all users. If you would like to contact us regarding the accessibility of our website or need assistance completing the application process, please email onlineaccommodations@alsa-national.org. This contact information is for accommodation requests only and cannot be used to inquire about the status of applications.

The ALS Association highly encourages their employees to be fully vaccinated, as considered per the CDC guidelines, with the COVID-19 vaccination. Requirements to have or obtain a COVID-19 vaccination may be applicable by state, local, and other federal orders or applicable lawful requirements by third-party clinics, vendors, or events attended on ALS Association business. If applicable, proof of vaccination will be required, unless approved for a legally required exemption by The ALS Association.