• Respond to persons living with ALS, their families, and caregivers’ inquiries for information on ALS and/or community resources.
• Assist persons living with ALS to register with The ALS Association as well as the ALS National Registry.
• Receive referrals and obtains all necessary patient, medical, demographic information, and documents from referral sources via various communication methods to establish and coordinate a plan of care.
• Assess both physical and psychosocial needs of those living with ALS and families, based on knowledge of ALS, the disease, and its ramifications.
• Conduct specialized care consultations and needs assessment for people living with ALS, caregivers, and family a variety of settings including office visits, phone/email, in clinic, at support groups, virtual home visits, or in person home visits, when appropriate.
• Advocate and assist people living with ALS obtain equipment, services, and care to improve quality of life.
• Consistently maintain quarterly contact/engagement with those living with ALS and/or their caregiver based on assigned area within the territory.
• Connect people living with ALS, caregivers, and families to programs and services provided by The ALS Association.
• Document all pertinent engagements with persons living with ALS, family, caregivers, or other healthcare professionals involved with the delivery of care and support in Salesforce.
• Responsible for educating and informing the general public and professionals about the nature of ALS, its management, related research, and the existence of services of The ALS Association.
• Update supervisor with respect to local community resources and educate those served regarding available resources.
• Facilitate support groups, engage participants, and schedule speakers as appropriate to meet the needs of the group.
• Serve as a member of the ALS Clinic multidisciplinary team and function as the liaison between the clinic and The Association.
• In partnership with supervisor, participate in Care Services program measurement and evaluation.
• Initiate and cultivate relationships with allied health professionals and community social and healthcare organizations.
• Provide professional in-service educational programs to healthcare professionals such as: home health and hospice agencies, Durable Medical Equipment (DME) providers, and Skilled Nursing Facilities.
• Participate in continuing education seminars, workshops, and conferences as available and necessary to gain knowledge on related topics.
• Performs other related duties as assigned by management.

• This job has no supervisory responsibilities.

• Bachelor’s degree in social work, nursing, public health, or related area with a minimum of three years of professional experience. Occupational therapist, physical therapist, speech therapist or direct experience working with the ALS population may be considered.
• Ability to work independently with little supervision; must be a self-starter.
• Knowledge of ALS a plus, but not required.
• Knowledge of Medicare, Medicaid, patient assessments skills, planning and case management preferred.
• Commitment to organization and highly efficient and conscientious about thorough follow-up.
• Skilled communicator, with superior interpersonal, verbal, and written skills.
• Able to handle confidential information and maintain high confidentiality.
• Excellent organizational and writing skills as well as diligent attention to detail.
• Employee must be able to lift or move 10 pounds, infrequently lift and/or move up to 25 pounds.
• Excellent computer skills. Proficiency with Microsoft Office products and other databases, Salesforce a plus.
• Ability to drive locally and travel nationally on Association business is required.
• Ability to work occasional evenings and/or weekends for Association business and events.

The ALS Association has compensation ranges for various work locations throughout the United States, allowing us to compensate employees competitively and consistently in diverse geographic markets. The above-listed listed range shows prospective compensation for this role; the appropriate range will be established by what is eventually determined to be the candidate's primary work location. Various factors, including the complexity and significance of the role, job duties/requirements, relevant experience and abilities, and primary work location, determine individual compensation. Compensation ranges are evaluated and typically adjusted on a regular basis. Offers are made within the compensation range that is in effect at the time of the job offer.

The Association may, at its discretion, offer merit-based increases tied to individual performance. The benefits listed may differ depending on employment status with the Association. Healthcare benefits, a 401(k) plan with employer match, short-term and long-term disability coverage, basic life insurance, well-being benefits, paid time off and several paid holidays are available to Association employees, among other benefits.

We are an equal opportunity employer, and all qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity or expression, pregnancy, age, national origin, disability status, genetic information, protected veteran status, or any other characteristic protected by law.

The ALS Association endeavors to make www.als.org accessible to any and all users. If you would like to contact us regarding the accessibility of our website or need assistance completing the application process, please email onlineaccommodations@alsa-national.org. This contact information is for accommodation requests only and cannot be used to inquire about the status of applications.

The ALS Association highly encourages their employees to be fully vaccinated, as considered per the CDC guidelines, with the COVID-19 vaccination. Requirements to have or obtain a COVID-19 vaccination may be applicable by state, local, and other federal orders or applicable lawful requirements by third-party clinics, vendors, or events attended on ALS Association business. If applicable, proof of vaccination will be required, unless approved for a legally required exemption by The ALS Association.